Colloque DESS - Together on an expedition in the Health Data Space

Stimuler la réflexion, s’ouvrir à de nouvelles perspectives, suivre l’actualité des recherches, des pratiques et des initiatives en santé publique, débattre; autant de fonctions remplies par les colloques du Département épidémiologie et systèmes de santé (DESS). À chaque session, des spécialistes d’horizons divers viennent présenter l’état de leurs recherches, leurs expériences ou leurs projets.

Ces colloques sont ouverts au publics. Ils s’adressent aux professionnelles et professionnels de la santé et sont notamment recommandés par la Société suisse des spécialistes en prévention et santé publique (SPHD) pour la reconnaissance de la formation continue.

Title

Together on an expedition in the Health Data Space

Summary

The Swiss Health Data Space Association puts the source of all biopsychosocial data in medicine, i.e., the human being, in the center of the Swiss digital health data model. By doing so, legal and governance problems linked to various approaches of secondary use of data are much easier to solve. And as we all experienced it with e-banking, a large amount of futile administration work becomes obsolete as soon as we will all be able to take informed and responsible care of our data.  Any of us has the power to accelerate the digitization of the health system. The vision of personalized medicine is based on the interpersonal connection of structured, standardized and high-quality digital health  data. Again, only the individual has the right to control its own data and is empowered (legally) to anonymize and connect them to others. .

Complete and securely stored health data that are accessible and understandable to the individual will enhance healthcare, save lives, and significantly reduce healthcare costs.

Despite it seems obvious overall benefits, the digital transformation of health is not progressing, as shown for example by the slow adoption of the Electronic Patient Dossier (EPD). For the individuals, their health data are too complex, and the personal benefits are unclear. For healthcare professionals it is additional, non-rewarding and unpaid work. To make personal and systemic benefits tangible, we plan an expedition into the health data space much like astronauts explored outer space in the last century.

In Phase I:  claim their own health data and test the existing infrastructure (I.e., the official EPD and privately owned data accounts). 

In Phase II of the expedition the secondary use of the health data in an anonymized, pseudonymized or synthesized form will be in scope.

Through the experiences gained during the expedition, Salutonauts and Mediconauts act as nucleation sites for a human-centered, digital, and sustainable transformation of the Swiss healthcare system.

Speakers

• Barbara C. Biedermann
  • General practitioner with her own practice in the Zurich Oberland
• Peter Grolimund
  • General Manager of the association Swiss Health Data Space and the co-owner of the data4ALL GmbH 

Participation

• Pour participer à distance, cliquez sur Rejoindre la réunion.